Tag: health

  • Challenges of Eating on the Autism Spectrum

    Autistic limited diet- Autistic people on the spectrum can experience increased sensitivity to light, touch, sound, and taste. This increased sensitivity can influence the variety of foods that they eat. Dietary considerations associated with Autism include, eating a limited diet- a small number of foods similar in colour and taste. Foods that are predictable may be preferred, for example one Big Mac looks, smells and tastes the same as any other Big Mac (or should do) therefore it is safe and predictable. Bananas on the other hand, differ in shape, colour and, taste and are unpredictable.

    Sounds Familiar?

    This sums me to a T. I’ve always had a problem with my weight, the problem being, that I have too much of it. I couldn’t understand why I had a set of rules around food. Growing up my world would implode if I couldn’t sit in a certain seat, facing a certain way. Parents, teachers and dinner ladies just couldn’t understand why I would choose to go without food if I couldn’t sit in a certain seat. I got told off a lot, this started my unhealthy relationship with food and eating. I was always told that I was cutting my nose off to spite my face. I’m autistic and the poetry of language sometimes eludes me. I didn’t understand that saying, I wasn’t cutting my nose off, I was refusing to put food in my mouth, I don’t eat with my nose!

    I suppose one thing that made it worse in primary school, was that my mother worked as a dinner lady (it was a small school, about 75 pupils) and when I used to get home from school in the afternoon, she would tell me that I had embarrassed her in front of everyone. I just couldn’t verbalise why I had to sit where I wanted to sit. Even now I have my very own seat at home, that no-one else uses when I’m around. If, on the exceedingly rare occasion we’re eating out, my family lets me pick where we’re sitting, it’s safer for me that way.

    Knife and Fork, Spoon Please!

    Cutlery is another sticking point. When I buy new cutlery, I must hold and rub every spoon in the shop. You see it’s the spoons that can make or break a mealtime. The spoon must be the right shape, size and feel. After I have bought the cutlery it’s that cutlery all the time. I have several different sets at home, but I only use certain ones. Spoons are my go-to for eating, they feel nicer than a fork. So, I cut my meals into bit sized pieces and then eat with a spoon.

    Drinks have a certain quirk Aswell, I use what I call Sippy cups, drinking beakers with a lid and a straw. There is method in my madness, if there is a lid nothing can get in my drink (dust, bugs etc). that maybe an OCD thing, but I only drink through a straw. I don’t like people using the same cups as me, so I have my very own special ones.

    When I go out, I pack my own cutlery and straws just in case, but I always have my own Sippy cup full of juice with me. Honestly, it’s like packing a bag for a toddler.

    The times of meals are also structured, breakfast when I wake up, lunch at midday and evening meal between 4pm and 5pm. I panic if those times deviate in any way. If I haven’t eaten my evening meal by half past 5, I don’t eat. It’s too late, it’s out of rhyme and rhythm. That is probably cutting my nose off to spite my face.

    Milk.

    Like I said earlier, I have always struggled with my weight. As a baby I had an illness which required me to take steroids for a while. These medications ballooned me up to look like the Michelin man’s child. Ever since then I have been, let’s call it bonny. It’s only within the last few years I have been able to stomach breakfast, literally I would always be sick after eating in a morning. I got bored of this day in, day out, so I cut out the middleman and didn’t eat. When I did eat breakfast, it was always toast. I don’t drink milk so cereal just wasn’t a choice for me. I was a fussy eater growing up and even now.

    What is for Lunch?

    Certain foods can’t touch, things must be eaten in a certain order and 9 times out of 10, they are eaten out of a bowl. I struggle with lunch; I can’t get past the sandwich way. Other foods don’t seem to fit in with the lunch time vibe, I’ve tried bigger meals like salads and pasta, but it all seems a bit too much for lunch. So, I stick with a sandwich, as I’m writing this, I have some lovely home boiled ham in the fridge just calling out for a bread roll and apple sauce. Nothing fancy.

    Just call me Nigella.

    Evening meals can be stressful, and I normally start to stim about it. I get overwhelmed. I have an arsenal of tried and tested recipes in my head, and I normally stick to those, remember, safe. I can put together meat and 2 veg no problem, but if I have to start a new recipe it is so daunting. I like to cook from scratch, not processed, I like to know what is in my food, OCD again. I have to meal plan and buy all the ingredients for the following week, I can’t just open the fridge and say well I’ll throw that and that together, I just can’t react quickly. Me and spontaneity just don’t go together.

    Longest Pregnancy Ever.

    I have food cravings, think being pregnant for the last 40 years. Some days it’s mustard some days it’s beetroot, never at the same time, which would be just weird! These cravings can last for months, at one period of my mustard phase I was eating ham and mustard sandwiches for lunch and evening meal every day for 4 months, then all of a sudden during a sandwich, I said nope, I don’t want that anymore and moved onto the next craving.

    I fall out with food a lot. When I am in-between cravings, I am lost, I don’t want to eat, it doesn’t interest me and I get bored. I lose my comfort and safe place. Eating the same thing all the time isn’t healthy and can border on infatuation, not to mention expensive. Its ok if I’m craving food that is cheap to buy but when it is something expensive the price adds up over the week, I’m not craving caviar just yet.

    Mush, Yuck!, Give me the Chunk.

    Texture of food is another big problem, I can’t eat a bowl of mush, mashed potatoes are a no-no, and soup must be chunky. Meat that has fast still on it makes me shiver inside. I like crispy chewy things that don’t look anaemic. Meat must be well done, no red stuff coming from it, I can feel Gordon Ramsey rolling his eyes, but no, just no.

    To sum up, food is a big problem for me, and I don’t see any way of solving that problem. I’ll just continue with the quirks, you can find me at the designated mealtime, in the same seat, with the same cutlery with my bowl and with my crispy food.

    Kayleigh x

    Just Pootling Along

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  • Understanding the UK Prescription Postcode Lottery

    Prescription Postcode Lottery in the U.K.

    The prescription postcode lottery in the UK is a significant issue that affects many patients. It refers to the variation in the availability and quality of healthcare services depending on where a person lives. This disparity can lead to unequal access to medications and treatments, which can have serious consequences for patients.

    One of the main reasons for this postcode lottery is the decentralisation of healthcare services. The National Health Service (NHS) is divided into various trusts and clinical commissioning groups (CCGs), each responsible for managing healthcare in their respective areas. This means that decisions about which medications and treatments are available can vary significantly from one region to another. For example, a patient in one area might have access to a particular medication, while a patient in another area might not.

    Another factor contributing to the postcode lottery is funding. Different regions receive diverse levels of funding, which can impact the quality and availability of healthcare services. Areas with higher levels of deprivation may receive more funding, but this does not always translate into better services. In some cases, funding may be insufficient to meet the needs of the local population, leading to gaps in service provision.

    The impact of the postcode lottery on patients can be profound. Those living in areas with limited access to medications and treatments may experience worse health outcomes compared to those in better-served areas. This can lead to increased health inequalities and a sense of injustice among patients who feel they are not receiving the same level of care as others.

    Addressing the prescription postcode lottery requires a concerted effort from policymakers, healthcare providers, and the public. Greater transparency in decision-making processes, equitable funding distribution, and a commitment to reducing health inequalities are essential steps in ensuring that all patients have access to the medications and treatments they need, regardless of where they live.

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  • Urgent Need for ADHD Diagnosis Services in Derbyshire

    The lack of attention deficit hyperactivity disorder (ADHD) diagnosis services in Derbyshire has become a pressing issue, leaving many individuals and families struggling to find the support they need. Despite the increasing awareness of the disorder and its impact on people’s lives, the resources available in Derbyshire remain insufficient, leading to long waiting times and inadequate care.

    The demand for ADHD services has surged in recent years, but the healthcare system has not kept pace with this growing need. As a result, individuals often have to wait months, or even years, to receive a diagnosis. This delay can have significant consequences, particularly for children and young adults, who may struggle with their education and social interactions without the appropriate support.

    The shortage of specialist services in Derbyshire further exacerbates the problem. While there are some dedicated clinics and support groups, they are often overwhelmed by the sheer number of referrals. The ADHD Centre in Derbyshire, for example, offers comprehensive assessments and personalised treatment plans, but the high demand means that people are left waiting for extended periods.

    The lack of timely intervention can lead to a deterioration in mental health and well-being, as individuals often experience anxiety, depression, and low self-esteem. These mental health disorders can be treated individually with multiple medications, but the lack of a formal diagnosis leads to a lack of appropriate medication. Those individuals who are formally diagnosed, can access medication specifically designed to alleviate the symptoms of the disorder. This in-turn can mitigate the symptoms of anxiety and depression. They can also access further support from professionals who are specialised in this field, schools, councils, and therapy. Without the diagnosis of ADHD, these support systems are frustratingly just out of reach, leaving a feeling of being in limbo and unable to live their life to its full potential.

    Parents and caregivers are also affected by the lack of diagnosis services in Derbyshire. Many parents report feeling frustrated and helpless as they navigate the complex and often confusing process of seeking a diagnosis for their child. The Derbyshire Healthcare NHS Foundation Trust provides some support through its specialist Nursing Ser vice, which collaborates closely with the Community Paediatrician Service to offer assessments and medication management. However, the limited availability of these services means that families are left without the help they desperately need.

    The impact of the lack of ADHD diagnosis services in Derbyshire is not limited to children and young adults. Adults also face significant challenges in accessing the support they need. A numberless amount of adults go undiagnosed for years, struggling with symptoms that   affect their work, relationships, and overall quality of life. The ADHD Centre in Derbyshire offers services for adults, including diagnostic assessments, medication management, and psychological therapies. However, the high demand for these services means that many adults are left waiting for help, often feeling isolated and misunderstood.

    The lack of ADHD diagnosis services in Derbyshire is a critical issue that needs urgent attention. The long waiting times and shortage of specialist services are leaving individuals and families without the support they need to manage the challenges of the disorder. It is essential for healthcare providers and policymakers to address this gap in services, ensuring that everyone in Derbyshire has access to timely and effective diagnosis and treatment. By doing so, we can improve the lives of those affected and create a more inclusive and supportive community for all.

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  • Rising Type 2 Diabetes in UK Children: Health Concerns

    By Kayleigh Northall.

    Type 2 diabetes in children is a growing concern in the UK, reflecting a broader global trend. This condition, once predominantly seen in adults, is now increasingly diagnosed in younger populations. The rise in type 2 diabetes among children is closely linked to lifestyle factors such as poor diet, lack of physical activity, and obesity.

    Recent data indicates that the prevalence of type 2 diabetes in children in the UK has been steadily increasing. According to the National Health Service (NHS), there has been a significant rise in the number of children diagnosed with type 2 diabetes over the past decade.

    This trend is alarming, as type 2 diabetes can lead to serious health complications, including cardiovascular disease, kidney failure, and nerve damage.

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    One of the primary drivers of this increase is the rising rate of childhood obesity. Statistics show that nearly one in five children in the UK is classified as obese.

    Obesity is a major risk factor for type 2 diabetes, as excess body fat can lead to insulin resistance, a key component in the development of the disease. Additionally, sedentary lifestyles and poor dietary habits, such as high consumption of sugary foods and beverages, contribute to the growing incidence of type 2 diabetes in children.

    Efforts to combat this issue are underway, with various public health initiatives aimed at promoting healthier lifestyles among children. Schools are implementing programs to encourage physical activity and educate students about nutrition. The government is also taking steps to address the issue, such as introducing measures to reduce sugar content in food and beverages and promoting healthier food options.

    The increasing prevalence of type 2 diabetes in children in the UK is a serious public health concern. Addressing this issue requires a multifaceted approach, including promoting healthy eating, increasing physical activity, and raising awareness about the risks associated with obesity and type 2 diabetes. By taking these steps, it is possible to reverse the trend and improve the health outcomes for children across the country.

    Chris Askew OBE, Chief Executive of Diabetes.org.uk says “it is shocking for even one child to be diagnosed with Type 2 Diabetes,” He adds “Government needs to entirely rethink its commitment to child health. The UK Government is letting our children down. With soaring numbers of children now living with obesity, and numbers diagnosed with type 2 diabetes on a concerning climb, we are facing a perfect storm which risks irreversible harm to the health of young people.” 

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