Category: Diagnosis

  • The Echolalia Quirk.

    also known as the ability to out-do Spotify.

    Echolalia – repetition of words just spoken by another person. Occurring with certain neurological, Neurodevelopmental or mental conditions.

    Echolalia is common with ADHD, Autism spectrum disorder and Tourette’s syndrome. The repetition can be words or phrases. Researchers believe this symptom happens due to frontal lobe dysfunction. This is the area of the brain that manages your thoughts, movements and memory.

    There are three theories relating to this.

     Dopamine dysregulation theory, is where too much, or too little can affect the way your brain tells your body how to communicate.

    The broken mirror neuron theory is where specialised neurons aren’t working as expected.

    The wealth of stimulus hypothesis, is where there is a disconnect between what you learn and how your body responds to it.

    But now for, echolalia and me…. certain words sound and physically feel nice to say, other AuDHDers would say the same.

    PIG.

    Photo by Cats Coming on Pexels.com

    PIG is a word that feels great to say over and over and OVER again. Though PIG feels great for me to say, some people may take offence, if they walk past me in the street. I really have to bite my tongue sometimes.

    Chick, Chick, Chick, Chick, Chicken

    There was an eventful shopping trip once. Whilst packing my shopping at a fast pace (I won’t name the shop), this one particular time, I had bought a pack of chicken breasts. Now I must say that with every item I put in the trolley I had said the name of it in my head. Back to the chicken, well the word “chicken” just seemed to roll off the tongue. It rolled off the tongue in the form off a song and let’s just say it wasn’t an inner monologue. I was in my happy oblivious world of white dancing hippos, fluffy clouds and tiramisu (yum). my husband caught my attention and as the white hippos took their bow, I realised where I was and what I was doing. I apologised profusely and continued packing the trolley, unfortunately I now had naked chickens dancing through rainclouds, going through my head.

    Thank You for the Music.

    Photo by Jepoy Fabian on Pexels.com

    Don’t get me started on songs…. Ok I’ve started. I seem to have a sub library of song lyrics available 24/7 at a moments notice, just call me Spotify on steroids. These can be blurted out at the most inopportune moments. At a male relatives funeral once, the speaker told us that “he always did it his own way” well here we go. I’m sat there head lowered, shoulders jiggling, not with tears but with giggles. Trying so hard not to channel my very own Frank Sinatra.

    Once a lyric is in my head it is repeated like a revolving door on black Friday. Just one line on repeat. I feel like a stuck gramophone. I am just glad I don’t have to pay the royalties.

    You can pick your friends but not your family.

    My family torments me sometimes, especially my adult daughter, knowing there are some phrases that trigger me.

    People of a certain age, ahem…. People who are old enough will understand the next few phrases. When my daughter feels in the mood to see me squirm, she’ll shout “Mother, I need to ask you something”. At this point I’ll stop doing whatever I’m doing and walk to the sound of her voice. “what’s up?” I’ll ask her. And this is where you’ll be old enough to know the answer or if you’re lucky enough not to know, ask your parents.

    with a totally straight face she’ll ask me…. Who lives at the bottom of the garden? My eyes close, and my lips purse as she laughs out loud, I say yep, yes, yeah down at the bottom of the garden, among the birds and the bees, live a lot of little people, called the Poddington peas. The conversations always go the same, but she’ll change the kids TV programme. Mum, where did Mr spoon go? Oh, for heaven’s sake, we’re off to Button Moon, we’ve followed Mr Spoon, Button Moon. Numerous Magic Roundabout quotes, oh Florence. Then here comes the big one…. BBBBbuuuuurrrrrkkkkKKEEEE – don’t you open that trap door, cos there’s something down there! Even as I write this, I’m singing all of these, lets see which one sticks till I fall asleep.

    You can find me by the sweetcorn….

    My life is surrounded by echolalia. I know it, my family know it. If I ever get lost in a supermarket all they have to shout is “der, der, der” and all day, every day I will answer back “Green Giant”.

    I’m predictable and stable with these stims. Sometimes they can be frustrating, but they are harmless. My family torment, but it’s done with love. I don’t have the maths ‘tism, but do I have the ability to remember lyrics, adverts and TV shows from over thirty years ago.

    So here I am signing off.

    Now where did Mr Spoon go?

    Kayleigh x

    Just pootling along

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  • Quirks and other Super Powers.

    and yes I did cringe at writing Super powers.

    As a relatively recent recipient of a diagnosis of Autism and ADHD (AuDHD), wow so many letters after my name. I haven’t written my acceptance speech yet. I was asked to compile a list of traits that I have. Traits, or Quirks as they are called in our house, vary person to person with a diagnosis on the spectrum. Most people with a diagnosis of Autism, ADHD or in this sarcastic world, both (two disorders that are polar opposites of each other), can relate to these traits.

    In these posts I’m going to look at some of my Quirks, can you relate to any of them?. I have an inquiring mind, tell me some of your Quirks. please share any tips and tricks that you use to navigate around them.

    I’d love to hear some of your stories.

    RIGHT, time to stop procrastinating (yep, that’s another Quirk).

    Just pootling along

    Kayleigh x

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  • Urgent Need for ADHD Diagnosis Services in Derbyshire

    The lack of attention deficit hyperactivity disorder (ADHD) diagnosis services in Derbyshire has become a pressing issue, leaving many individuals and families struggling to find the support they need. Despite the increasing awareness of the disorder and its impact on people’s lives, the resources available in Derbyshire remain insufficient, leading to long waiting times and inadequate care.

    The demand for ADHD services has surged in recent years, but the healthcare system has not kept pace with this growing need. As a result, individuals often have to wait months, or even years, to receive a diagnosis. This delay can have significant consequences, particularly for children and young adults, who may struggle with their education and social interactions without the appropriate support.

    The shortage of specialist services in Derbyshire further exacerbates the problem. While there are some dedicated clinics and support groups, they are often overwhelmed by the sheer number of referrals. The ADHD Centre in Derbyshire, for example, offers comprehensive assessments and personalised treatment plans, but the high demand means that people are left waiting for extended periods.

    The lack of timely intervention can lead to a deterioration in mental health and well-being, as individuals often experience anxiety, depression, and low self-esteem. These mental health disorders can be treated individually with multiple medications, but the lack of a formal diagnosis leads to a lack of appropriate medication. Those individuals who are formally diagnosed, can access medication specifically designed to alleviate the symptoms of the disorder. This in-turn can mitigate the symptoms of anxiety and depression. They can also access further support from professionals who are specialised in this field, schools, councils, and therapy. Without the diagnosis of ADHD, these support systems are frustratingly just out of reach, leaving a feeling of being in limbo and unable to live their life to its full potential.

    Parents and caregivers are also affected by the lack of diagnosis services in Derbyshire. Many parents report feeling frustrated and helpless as they navigate the complex and often confusing process of seeking a diagnosis for their child. The Derbyshire Healthcare NHS Foundation Trust provides some support through its specialist Nursing Ser vice, which collaborates closely with the Community Paediatrician Service to offer assessments and medication management. However, the limited availability of these services means that families are left without the help they desperately need.

    The impact of the lack of ADHD diagnosis services in Derbyshire is not limited to children and young adults. Adults also face significant challenges in accessing the support they need. A numberless amount of adults go undiagnosed for years, struggling with symptoms that   affect their work, relationships, and overall quality of life. The ADHD Centre in Derbyshire offers services for adults, including diagnostic assessments, medication management, and psychological therapies. However, the high demand for these services means that many adults are left waiting for help, often feeling isolated and misunderstood.

    The lack of ADHD diagnosis services in Derbyshire is a critical issue that needs urgent attention. The long waiting times and shortage of specialist services are leaving individuals and families without the support they need to manage the challenges of the disorder. It is essential for healthcare providers and policymakers to address this gap in services, ensuring that everyone in Derbyshire has access to timely and effective diagnosis and treatment. By doing so, we can improve the lives of those affected and create a more inclusive and supportive community for all.

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